Insurance Advocacy Resource Center (IARC)

The Arc Insurance Advocacy Resource Center (IARC) helps “families of a loved one with a developmental disability navigate their private insurance policies and increase knowledge of basic health insurance issues, including the Affordable Care Act,” with a commitment to “all people with intellectual and developmental disabilities realizing their goals of learning, living, working and fully participating in the community.”

About Special Kids (ASK)

ASK is an Indiana-based parent-to-parent organization that works throughout the state to “give support, answer questions and provide information and resources” to families with special-needs children. Their staff parent liaisons, who are parents of special needs children and extensively trained, help families “anticipate child and family needs, identify appropriate resources, and access community systems to help them meet the needs of their children.”

Meet the Little Star clinical team at our May 3 Newburgh Center open house!

Little Star is proud to invite the community and prospective Little Star parents to tour our newest center in Newburgh.

On Wednesday, May 3, from 6 p.m. to 7:30 p.m., we welcome you to come check out our latest ABA therapy center, meet our clinical team and learn how you can enroll your child to be a part of the Little Star family.

You can find us at 3777 Haley Dr., Newburgh 47630.

Have questions? Please direct to them to our family services director, Victoria Blessing-Wade, at 317-249-2242 or [email protected].

We can’t wait to meet you!

Former Autism Speaks leader joins Little Star Center

Dan Unumb, former executive director of the Autism Speaks Legal Resource Center, is now a part-time contractor working in partnership with Little Star Center.

Dan is advocating for families at Little Star Center and throughout the state as they face legal challenges with insurance coverage. He also is in the development stages of a new Autism Legal Resource Center to support families impacted by autism across the country. Dan and his wife, Lorri, have a son, Ryan, who is impacted by autism. Dan is passionate about his work with Little Star Center and long-term goal to create a national Legal Resource Center. Read on to learn more about Dan’s work.

What attracted you to joining Little Star Center? Innovative and talented personnel. Mary (Rosswurm) has great vision and Tim (Courtney) has expertise. Everyone has a commitment to quality services and wanting to do more. I am grateful for the Board of Directors  at Little Star Center for their foresight in ensuring that the Autism Resource Center continues on now that Autism Speaks has decided to discontinue it.

What will be your primary role for Little Star Center? To provide legal analysis of autism treatment coverage issues and legislation and consult with clinicians to be sure that families do not face undue barriers to their treatment or limitations to their treatment that are not allowed under their insurance plan.

How did you get into this field of work? My 15-year-old son, Ryan, was diagnosed with autism at the age of 2. At the time, I was an attorney with the U.S. Department of Justice. While my wife, Lorri, and I had great insurance, we found that it did not cover ABA therapy, even though every autism expert recommended it.

Lorri and I literally worked to pay for ABA therapy for Ryan. It’s basically you, a checkbook and a therapist. We sold our house and moved to South Carolina to be near family and have a home that was less expensive. When we took a breath, we realized ABA therapy is medically necessary and there should be insurance coverage – and there should be insurance coverage to pay for it.

Dan with his son, Ryan, age 15, who was diagnosed with autism at age 2.

We found a clause under Medicaid and started to work on getting coverage in South Carolina. We formed groups, pooled our money and met with legislators. After we got a bill through both the house and the senate in South Carolina, the governor vetoed it. This was in 2007. We got people to rally at the last minute to get the veto overwritten. This bill is now known as Ryan’s Law.

Since that time, we have created a national summit where professionals come together to address various laws and insurance coverage requirements. I ended up working for Autism Speaks, where I was the executive director of the Legal Resource Center until it was discontinued late last year. Lorri continues to serve as vice president of government of affairs.

What will the legal resource center provide to families when it is established? The benefits will be direct and indirect. We will have an educational emphasis where we educate and train other lawyers in this area. We will provide resources for parents to help them understand what they can do on their own behalf and offer them a broad network of attorneys in which they can use (for insurance issues).

What do you think is the biggest challenge facing families seeking ongoing ABA therapy for their child with autism? The healthcare law and what is going to happen nationally with Medicaid and private insurance will impact all of us. Families need the tools and rights to ensure coverage for this medically necessary condition. It will be important to have a state law mandate that includes broad coverage.

What do you enjoy most about serving families affected by autism? Everyone’s path is different and I appreciate that more and more—from behavior issues to non-verbal challenges. I feel a kinship with these parents. I enjoy the impact we can make with our advocacy work. It advances the ball. It will have a lifelong impact for the children directly involved and for their families and future generations.

Establishing good sleep habits for children with autism

By Dr. Breanne Hartley, BCBA-D
Senior Clinical Director

Approximately 25 percent of children have sleep problems. For children with autism, this percentage significantly increases to approximately 45-80 percent.  It is extremely important for all children to get proper rest. A child who is not well rested will often demonstrate irritability, problem behavior, and potentially impaired academic performance.

One of the most frequent sleep problems that children both with and without a diagnosis of autism have is onset latency, which is when a child has trouble falling asleep. It can often be even more difficult for your child to fall asleep in the summer when the days are longer and the nights are brighter. Some strategies to help decrease the time it takes for children with autism to fall asleep are:

Establish a bedtime routine
Start and maintain a regular bedtime, preceded by several calming activities that occur at the same time each night. For example, coloring from 7:30-7:45 p.m., bath from 7:45-8:15 p.m., read books from 8:15-8:30 p.m., bedtime at 8:30 p.m.

Limit physical activity
Physical activity is a must for healthy children. However, engaging in physical activity too close to a planned bedtime may interfere with falling asleep quickly. Consequently, encourage less rigorous activities closer to bedtime such as reading books, playing with blocks, arts and crafts, watching a movie, or playing board games.

Eliminate naps
One reason your child may not be falling asleep quickly is that he or she may not be tired. If your child is dependent on a nap during the day, begin gradually decreasing the length of that day-time nap. For example, if your child is accustomed to a two-hour nap, begin waking your child from that nap about 10-15 minutes earlier each week. This will allow for a transition away from napping in approximately two months.

Limit caffeine
It is no surprise that caffeine is a stimulant and should, therefore, be limited prior to sleep. Sodas are typically culprits of housing enough caffeine to keep your little ones awake, but also keep in mind that chocolate also contains caffeine. Therefore, limiting chocolate and foods that contains chocolate (like the summer favorite, chocolate ice cream) will be beneficial.

Reserve the bedroom for sleeping
Oftentimes, children’s bedrooms can serve a dual function as a playroom that houses many toys. Begin to reserve your child’s room solely for sleeping. Clearing out all toys and other distractions will help to establish the bedroom as a calm place that is kept for sleep.

Establish sleep expectations
It is common for children to get out of bed shortly after they are tucked in at night. Establish clear expectations so that your child understands he is not to get out of bed after bedtime. Resist the temptation to welcome your child into your bed to sleep for the night, as this may increase future instances of getting out of bed.

Faded bedtime
Another strategy is to keep your child awake until much later in the evening, past the time he typically falls asleep (for example, 11:30 p.m. versus 9 p.m.). This strategy helps a child fall asleep much more quickly because the child should be extremely tired. Then, gradually move bedtime up in small intervals of time (11:30 p.m., 11:15 p.m., 11 p.m., etc) until you reach a “reasonable” bedtime.

 

Staff Spotlight: Married couples at Little Star Center find work-family balance

Personal relationships in the workplace can be challenging, but the five couples at Little Star Center who mix work and marriage are finding a healthy balance. In celebration of Valentine’s Day, two of our couples share their stories of work-family balance.

Casey and Maggie Moore and their two children.

Casey and Maggie Moore, married five years. Casey is program and clinical project specialist in Carmel and Maggie is clinical director of the early learner program in Carmel.

It’s safe to say Little Star Center sealed the deal for Casey and Maggie. He proposed after they both accepted job offers to work in Carmel six years ago. The couple, who met in a research methods class at Western Michigan University, has worked together in various jobs for nearly 17 years, much longer than they’ve been a couple. Their long history of jobs together, in addition to their roles in different programs at Little Star Center, makes their working relationship a little easier. Maggie cites a major perk of working together is that she can leave the driving to Casey each day.

When away from work, Casey and Maggie love quality time with their two children and enjoy the outdoors. They are training together for their first half marathon this summer.

Taylor and Kerri Butts, married five years. 
Taylor is a Middle Star trainer in Carmel and Kerri is a scheduler for the Early Learner and In Home programs in Carmel.

Taylor and Kerri Butts have fun with their son.

Taylor and Kerri, high school sweethearts, have known each other for 13 years. This Valentine’s Day will be extra special because the couple is expecting their second child! Kerri says working in the same location as her husband while pregnant is an extra perk because, “if anything were to happen, I know exactly how to get a hold of him.”

Although the couple works in different programs at Little Star Center, they find time to check in on each other, especially on tough days.

Away from work, Taylor and Kerri keep talk about their jobs to a minimum and find joy in family time with their son, playing board games and training together for marathons.

 

Winter months mean getting creative with social and play skills

By Dr. Breanne Hartley, BCBA-D

Winter is upon us, as the leafless trees and cool temperatures will not let us forget. The cold winter months require different kinds of leisure activities for everyone, including children with autism. Children are no longer able to enjoy summer activities such as swimming in the local pool, or playing on the neighborhood swing set. Instead, children are oftentimes required to be indoors engaging in very different types of activities when the weather is cool.

Of course, we do not want the winter months to result in a decrease in social learning opportunities because oftentimes children with autism demonstrate deficits in social skills. These deficits may often consist of failing to make social initiations, failing to sustain conversations and preferring isolated play versus interactive play with other children. Many daily learning opportunities are required in order to help facilitate engagement in more appropriate social behavior. Therefore, although children are required to be inside for much of the next couple of months, it does not mean social and play opportunities with other children need to be put on hold. There are a variety of very fun social activities that you can encourage your child to participate in. For example, playing board games and creating arts and crafts.

Keep in mind that many people can act as “peers” to teach and facilitate social interactions; parents, siblings, grandparents, neighbors, cousins, and so many more!

Here are two ways you can make indoor activities a fun social opportunity for your child with autism:

Playing Board Games

Your child may have never shown interest in playing games like Chutes and Ladders or Hi-Ho-Cheerio, but that doesn’t mean you cannot teach them how. In order to make game-playing successful, start out with a small, easily achievable goal. For example, instead of playing the entire game on your first attempt, simply require that your child try one part of the game-playing experience. Initially, the “game” may be picking a color card from the deck in Chutes and Ladders, and saying “I got green”. Build in social opportunities by taking turns; your child picks a card and states the color, and then their brother picks a card and states the color. This allows your child to learn many new skills such as interacting with someone with a common goal, taking turns, and paying attention to someone else as they take their turn.

Arts & Crafts

Engaging in arts and crafts activities is another great way to encourage social interactions. With winter approaching, it would be seasonally appropriate to make a snowman craft. You can be creative and make a snowman however you’d like out of construction paper, pipe cleaners, cotton balls, “bug” eyes, etc. Once your snowman is complete, provide your child with similar materials that you used, and tell her to “Make a snowman like mine!” Your child will have fun attempting to match her snowman with yours by referencing what your model looks like. As your child puts each piece of the snowman together, start up conversation such as, “My snowman’s scarf is red. What color is your snowman’s scarf?”, “Look, my snowman has a hat to keep his head warm. What keeps his hands warm?”, “My snowman’s mittens are red like an apple. Your snowman’s mittens are green like (have your child fill in the blank).” Once both snowmen are complete, use them to play interactively by pretending they are riding in cars, sliding down slides, and building blocks. This arts and crafts activity allows your child to learn new skills such as copying a craft modeled by someone else, and engaging in conversation.

Enjoy playing with your child, and stay warm this winter!

Breanne is senior clinical director at Little Star Center.

 

 

 

Little Star Center clinical director selected to serve on BACB committee

Breanne HartleyCongratulations to Dr. Breanne Hartley, senior clinical director at Little Star Center, who will serve as a coach on the Behavior Analyst Certification Board’s (BACB) Code Compliance Committee (CCC). Dr. Hartley was selected to serve on the committee, which helps certificants who could benefit from consultation, experience, and/or educational information to address less egregious alleged ethical violations.
 
Dr. Hartley will meet with certificants and develop a plan to promote ethical professional development (e.g., additional training, readings, developing checklists).
Since 2002, Dr. Hartley has worked with children and young adults with developmental disabilities, ranging in age from 2 years-old to 25 years-old, in homes, schools and center-based environments. Additionally, she has experience teaching several behavior analysis courses at the university level including Concepts and Principles of Behavior Analysis, an Autism Practicum Seminar, and a Behavior Analytic Performance Management course. Dr. Hartley has overseen the training and development of numerous Bachelors and Masters level students working towards obtaining board certification in the field of Behavior Analysis.
Dr. Hartley joined the Little Star Center staff in 2015.

Staff Spotlight: Jeremy Cole, Lafayette West, Program Manager Apprentice

As a program manager apprentice, Jeremy is responsible for assisting the program managers at Little Star Center Lafayette West with daily clinical activities, including generalization testing and graphing. Jeremy also is responsible for coordinating our staff volleyball leagues.

Here’s more information about Jeremy:

What do you most enjoy about your job at Little Star Center? Getting an opportunity to be a part of the growth of the children every day and to be able to see the evidence of ABA therapy and its effectiveness.

What’s the best advice you’ve ever been given?  If they can’t learn the way we teach, we teach the way they learn.

One thing I want people to know and understand about working with children affected by autism is….working with one child who has autism is working with one child who has autism.  No two individuals with autism are the same.

What are your favorite activities when not working at Little Star Center?  I love following my sports teams from Michigan and going to concerts.  I also love traveling to see my family in Michigan and Tennessee.

 

Little Star Center creates wish list for #GivingTuesday

Please consider helping Little Star Center gather much-needed supplies on our wish list on #GivingTuesday, an annual campaign to encourage communities to give back to charities and causes they support. Parents, businesses and others in the community can help us meet the needs of our wish list on or before #GivingTuesday on Nov. 29. Items will be accepted at all Little Star Center locations.

Financial contributions also can be made for these items and to support Little Star Center’s scholarship program, which serves as a safety net for families facing insurance challenges, also are accepted. Click here to donate. Please designate your donation as #GivingTuesday. Please email Milissa Harman at milissahbr @littlestarcenter.org for more information or if you have questions. 

Little Star Center’s Wish List for #GivingTuesday

All centers

Wii consoles

Wii games (family rated)

iPads (used, good condition)

 

Bloomington

Legos

Trains

Train tracks

Erector set

Basketball hoop (kid size)

Basketball hoop for outdoors

Tee ball

Soccer ball and net

 

Playdoh

Adult tricycle

Kids bike with training wheels

Group YMCA membership

Magic Sand

Counting Bears

Felt board and playset

 

Carmel

Secure, adaptive swing with straps or a support bar and full back for learners up to age 12

Early Learner Program

K’Nex

Mario K’Nex

Baby dolls and supplies (bottles, bath tub, stroller, etc.)

Unbreakable mirrors for learner play

Lafayette West

Christmas tree

Holiday decorations

Wagon

VHS player

Bike with training wheels (medium sized)